Cahir O’Hagan from Clonoe, County Tyrone, was 25 when he died waiting for a double lung transplant.

She had cystic fibrosis (CF), an inherited condition that causes sticky mucus to build up in the lungs and digestive system.

Cahir’s condition could not be improved with the available life-saving modulating medications that help prolong and improve the lives of approximately 90% of people living with CF.

Cahir’s brother Paul said he was one of the other 10% for whom these treatments don’t work, and said he died waiting for a double lung transplant.

Now, a year after Cahir’s death, Paul has called for more work to be done so that all people living with CF have access to life-saving medications.

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